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Rare Disease Day at Janssen Pharmaceuticals

Rare Disease Day at Janssen Pharmaceuticals

SmithSolve Celebrates Rare Disease Day at Janssen Pharmaceuticals To celebrate, and show our support, of Rare Disease Day (RDD) 2016, sponsored by Rare New ... Read More
New Jersey Rare Disease Day

New Jersey Rare Disease Day

The New Jersey Rare Disease Alliance is made up of individuals working to spread awareness for rare diseases. These individuals include patients, caregivers, physicians, ... Read More

Reflecting on Rare Disease Day

By Tina Okun

Reflecting on Rare Disease Day

By Tina Okun

What would you do if you were suffering from a mystery illness and no matter how many doctors you saw, no one could tell ... Read More
Living With It

By Jean Campbell

Living With It

By Jean Campbell

I’m constantly amazed and inspired by the resilience of people living with rare and chronic diseases. Over the past 20 years as a patient ... Read More
aHUS Meetups

aHUS Meetups

Imagine that you or your child is diagnosed with a severe, life-threatening disease. Now imagine that the disease is so extremely rare that you ... Read More

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