Rare Disease Day at Janssen Pharmaceuticals SmithSolve Celebrates Rare Disease Day at Janssen Pharmaceuticals To celebrate, and show our support, of Rare Disease Day (RDD) 2016, sponsored by Rare New ... Read More
New Jersey Rare Disease Day The New Jersey Rare Disease Alliance is made up of individuals working to spread awareness for rare diseases. These individuals include patients, caregivers, physicians, ... Read More
Reflecting on Rare Disease Day By Tina Okun What would you do if you were suffering from a mystery illness and no matter how many doctors you saw, no one could tell ... Read More
Living With It By Jean Campbell I’m constantly amazed and inspired by the resilience of people living with rare and chronic diseases. Over the past 20 years as a patient ... Read More
aHUS Meetups Imagine that you or your child is diagnosed with a severe, life-threatening disease. Now imagine that the disease is so extremely rare that you ... Read More