Imagine that you or your child is diagnosed with a severe, life-threatening disease. Now imagine that the disease is so extremely rare that you may never meet another family affected by the same condition.
That’s why SmithSolve helped organize the aHUS Meetups in partnership with The Global Genes | RARE Project and The Foundation for Children with Atypical HUS. These regional forums give patients with atypical hemolytic uremic syndrome (aHUS) and their families opportunities to learn about their disease, share their stories and support each other.
Learn more about aHUS meetups.