Rare Disease Communities Rising Together.

Rare Disease Patient Ambassador Programs

People living with rare diseases want information and insights from trustworthy peers in their community who have lived similar experiences. Unfortunately, many go their entire lives without hearing from someone else affected by their condition.

At SmithSolve, we specialize in building strong, credible, and personal connections within rare disease communities. We show up. We prioritize genuine relationships. We listen to understand the unique challenges and needs of patients, and we work across stakeholders, including biopharma companies, to address barriers. When it comes to helping patients tell their story and inspire action, we deliver.

Our patient ambassador services connect stakeholders with people who are eager to share their experiences. These programs support commercial teams in community education and empowerment through:

      • Story Shares: Capture authentic personal journeys in multiple formats
      • Peer-to-Peer Programs: Host educational sessions in collaboration with experts
      • Mentor Programs: Offer compliant, one-on-one support
      • Feedback Sessions: Secure feedback on materials and initiatives so they resonate
      • Conference Participation: Provide opportunities to advocate for patient-centered care
      • Training: Coach individuals on how to share their experiences

 

Keys to Successful Ambassador Programs

 

Integration of patient advocacy organizations and professionals at every step Engagement of community members with experiences that match treatment objectives Deployment of strategic and compliant tactics to reach the unreached

 

“I’ve heard from community members that they really love SmithSolve, and everyone’s been very kind. They feel heard and understood.”

 

Contact us for a free consultation: 

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