Patient Story Samples

We feel a great sense of privilege and responsibility when our partners choose us to share rare experiences and stories from the communities they serve. We achieve success by adhering to our guiding principles from development through execution.

  • We establish authentic connections with the communities invested in these stories
  • We are sensitive to people’s needs and understand being vulnerable can be difficult
  • We know how to align client goals with authentic stories within compliance guardrails

The samples below represent our approach and illustrate our ability to adapt and develop projects based on unique client needs.

“I want to thank SmithSolve for giving me the opportunity to share some of my life experience with my rare community. I can hear the emotion in my voice, and it’s very raw for me to open up about living with XLH, but it was also a really good experience for me. I really thank you all for what you do.”

Natascha
Individual affected by X-linked hypophosphatemia (XLH)

Photography

Catalyst Pharmaceuticals

Price

These images show Price, an individual living with Lambert-Eaton myasthenic syndrome (LEMS), in his element at home and enjoying his favorite hobby, photography.

AVROBIO

Arianna

Arianna is a child with Gaucher Type 3 disease. We captured Arianna with her mother in their everyday reality to illustrate what it’s like living with a complex and debilitating rare genetic disorder. At the same time, we shared the love, strength, and fun they find every day together.

Video

Ultragenyx Pharmaceutical

Melissa and Dillinger

Melissa, mother of Dillinger who lives with XLH, sheds a light on the signs and symptoms associated with XLH and her son’s journey to diagnosis.

Click here to view the video on the XLH Link page.

Ann

In this video, Ann shares her experiences living with Tumor-induced Osteomalacia (TIO). We focused on her diagnostic odyssey and the importance of self-advocacy for this ultra-rare condition. SmithSolve captured the video during the pandemic, therefore it was filmed virtually via remote capture.

Click here to view the video on the Ultragenyx Patient Advocacy website.

Catalyst Pharmaceuticals

Pat

Pat is an individual living with Lambert-Eaton myasthenic syndrome (LEMS). In this branded video example, she describes the impact of therapy on her symptoms and how it’s changed her life.

Click here to view the video on the product website.

Price

Price lives with Lambert-Eaton myasthenic syndrome (LEMS). In this video, he discusses his long journey to diagnosis, describes how he felt when his symptoms first appeared, and shares his experiences with and after starting therapy.

Click here to view the video on the product website.

Jazz Pharmaceuticals

Allie

Allie was diagnosed with acute myeloid leukemia, and then developed a complication called veno-occlusive disease (VOD) following a stem cell transplant. We captured the signs and symptoms associated with VOD, so clinicians know how to spot this rare complication and highlighted her experience with a life-saving treatment.

Click here to view the video on the product website.

Written Narrative

AVROBIO

Adrianna

Adrianna is an individual with Gaucher Type 1 disease. We captured Adrianna’s and her family’s story via photojournalism and written narrative. Even with current treatments, people living with Gaucher disease face significant symptoms every day.

Click here to read Adrianna’s story and see more of her photos.