Uniting to Improve Understanding of Gene Therapy

PPALS Capstone Poster

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Research presented at the Gene Therapy for Rare Diseases conference at the New York Academy of Sciences: “Enhancing Awareness and Understanding of Gene Therapy among Rare Disease Communities: A Research-Driven Roadmap”

PPALS Capstone Infographic

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Highlights from our research and a roadmap for gene therapy education

A revolution in medicine is underway as researchers advance a growing number of promising investigational gene therapies, including many for rare diseases.

Following decades of research, the concept of “genes as medicine” is becoming a reality. Last year, 802 clinical trials of gene and cellular therapies were underway worldwide, including 66 Phase 3 trials, according to the Alliance for Regenerative Medicine.

Are we ready for the revolution? Research conducted by SmithSolve and partners reveals significant and persistent knowledge gaps about gene therapy across diverse stakeholders. A unified approach to communication and education will be critical to support informed decision-making and patient access to these therapies.

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To download “Enhancing Awareness and Understanding of Gene Therapy among Rare Disease Communities: A Research-Driven Roadmap” fill out the form below and we will send you a download link via email.

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