2013 Global Genes RARE Project Tribute

By Tina Okun

SmithSolve is a proud sponsor of The Global Genes | RARE Project, one of the leading rare and genetic disease patient advocacy organizations. This fall we attended the RARE “Tribute To Champions of Hope” Gala to honor rare disease champions in advocacy, patient care and collaboration in science. It was a wonderful event honoring individuals who are making a difference in the rare disease community, including Dr. Stephen Groft, Director at the National Institutes of Health, Office of Rare Diseases Research.

Chris Smith, Tina Okun and Jean Campbell also participated in the 2013 Rare Patient Advocacy Summit and Corporate Alliance to share information, identify needs and plan activities for the year ahead.

Watch a short video.

Learn more about the Global Genes Project.